2018 Advocacy Recap

Latest news on PBC ADVOCATE activities in 2018: With 2018 nearly over, it seems like a good time to recap some of the highlights of advocacy activities in 2018. Many exciting events and opportunities to advocate for PBC patients happened this year. As we continue to build our network, and develop new connections through that … More 2018 Advocacy Recap

Primary Biliary Cholangitis gets officially a new ICD Code

Today is a truly monumental day for PBC patients around the world. PBC now (finally) has the last step in our name change from Primary Biliary Cirrhosis to Primary Biliary Cholangitis in the book, literally. The ICD-11 codes were just released and we have our new code for Primary Biliary Cholangitis, DB96.1. Thanks to all … More Primary Biliary Cholangitis gets officially a new ICD Code

What Doctors Have Learned By Having Auto-Immune Illness Themselves

I recently read an interesting commentary written by two physicians, both of whom are dealing with autoimmune disease in their own bodies. The journey of each autoimmune (AI) disease patient is different and because the risk of having multiple AI diseases or disorders is higher if you have one, this is particularly relevant to the … More What Doctors Have Learned By Having Auto-Immune Illness Themselves

MRE & Me

I was recently honored by Resoundant, the makers of Magnetic Resonance Elastography (MRE) equipment that provides a non-invasive image liver by them sharing my personal story. MRE is a preferred technology for imaging of the liverĀ¹ due to its detail and ability to accurately assess liver fibrosis in liver disease patients. Having undergone a MRE … More MRE & Me